{"id":7102,"date":"2023-08-16T12:44:59","date_gmt":"2023-08-16T12:44:59","guid":{"rendered":"https:\/\/www.dementiauk.org\/?page_id=7102"},"modified":"2026-03-18T14:05:38","modified_gmt":"2026-03-18T14:05:38","slug":"coping-with-feelings-of-guilt-when-you-care-for-someone-with-dementia","status":"publish","type":"page","link":"https:\/\/www.dementiauk.org\/information-and-support\/looking-after-yourself-as-a-carer\/coping-with-feelings-of-guilt-when-you-care-for-someone-with-dementia\/","title":{"rendered":"Coping with feelings of guilt as a dementia carer"},"content":{"rendered":"<p><!--StartFragment --><span class=\"cf0\">Caring for a person with dementia can be challenging and many people will feel a range of emotions as a carer. One of the most common feelings is of guilt. On this page, our dementia specialist Admiral Nurses explore why carers might feel guilty, how to manage these feelings and how to get support.<\/span><!--EndFragment --><\/p>\n<h2>Is it normal to feel guilty as a carer?<a id=\"carer\"><\/a><\/h2>\n<p><!--StartFragment --><span class=\"cf0\">When you are a carer, it\u2019s normal to experience a range of emotions, guilt being one of them. Whether you feel that you\u2019re not the best person to do the job or are struggling to cope, it\u2019s important to remember that you are human and your feelings are valid.\u00a0<\/span><!--EndFragment --><\/p>\n<h2>Why do I feel guilty?<a id=\"guilt\"><\/a><\/h2>\n<p><!--StartFragment --><span class=\"cf0\">There are a number of reasons that someone may feel guilty as a carer and each of them deserves talking about and understanding so that you can get support and relieve feelings of <a href=\"https:\/\/www.dementiauk.org\/information-and-support\/guilt-and-dementia\/\">guilt<\/a>.\u00a0<\/span><!--EndFragment --><\/p>\n<p><!--StartFragment --><\/p>\n<h3 class=\"pf0\"><span class=\"cf0\">Caregiver burnout<\/span><\/h3>\n<p class=\"pf0\"><span class=\"cf0\">All of us can face burnout if we are physically, <a href=\"https:\/\/www.dementiauk.org\/information-and-support\/specialist-diagnosis-and-support\/emotional-impact-of-a-diagnosis\/\">emotionally and mentally exhausted<\/a>. When you are caring for someone with dementia, it is understandable if you become overwhelmed at times. It\u2019s important to recognise how you\u2019re feeling and talk to someone about it to start to tackle burnout.\u00a0<\/span><\/p>\n<h3 class=\"pf0\"><span class=\"cf0\">Not feeling like you\u2019re doing enough<\/span><\/h3>\n<p class=\"pf0\"><span class=\"cf0\">When you are caring for someone with dementia, it is easy to feel that you could be doing more, especially if you have a close relationship with that person. Remind yourself that it is not possible to care for someone on your own 24 hours a day <\/span><span class=\"cf1\">\u2013 and that you are doing your best.\u00a0\u00a0<\/span><\/p>\n<h3 class=\"pf0\"><span class=\"cf1\">Feeling like you are neglecting other areas of your life<\/span><\/h3>\n<p class=\"pf0\"><span class=\"cf1\">It may feel like other areas of your life are being neglected because of your caring duties, such as time with other family members, your friendships, social life or work. We are often our own harshest critics, and talking openly about the situation with the people you feel you\u2019re neglecting may help you feel better understood.\u00a0<\/span><\/p>\n<h3 class=\"pf0\"><span class=\"cf1\">Relationship difficulties<\/span><\/h3>\n<p class=\"pf0\"><span class=\"cf1\">There are many reasons a <a href=\"https:\/\/www.dementiauk.org\/information-and-support\/looking-after-yourself-as-a-carer\/changing-relationships-and-roles\/\">relationship<\/a> may struggle when someone takes on a caring role. In romantic relationships, it can be challenging to spend quality, one-to-one time with your partner around your caring responsibilities, while children and young people may struggle to understand the challenges of being a caregiver and why you have less time and energy to devote all your energy to them, leading to feelings of guilt. Try to be as open with them as possible to help them understand.\u00a0<\/span><\/p>\n<p class=\"pf0\"><span class=\"cf1\">Your relationship with the person you are caring for may have also become more difficult, particularly if they cared for you at one point in your life \u2013 for example, if you care for a parent.\u00a0<\/span><\/p>\n<h3 class=\"pf0\"><span class=\"cf1\">Missing life before being a carer<\/span><\/h3>\n<p class=\"pf0\"><span class=\"cf1\">It is normal if you sometimes miss your life before you were a carer and the freedom that came with it. This is common and something that many people feel at times; it doesn\u2019t mean you don\u2019t want to care for the person you are supporting.<\/span><\/p>\n<h3 class=\"pf0\"><span class=\"cf1\">Feeling frustrated<\/span><\/h3>\n<p class=\"pf0\"><span class=\"cf1\">The <a href=\"https:\/\/www.dementiauk.org\/information-and-support\/about-dementia\/signs-and-symptoms-of-dementia\/\">symptoms of dementia<\/a> can be challenging and complex, and it\u2019s understandable if you sometimes become frustrated with the person, particularly if you don\u2019t know how to help them or they are resisting your support. It\u2019s important that if you feel frustrated, you give yourself a few minutes to take a deep breath and feel calmer \u2013 this might involve going into another room, if it\u2019s safe to leave the person briefly.\u00a0<\/span><\/p>\n<p class=\"pf0\"><span class=\"cf1\">If the person you are caring for is displaying more challenging behaviour or struggling more than they did before, it\u2019s important to talk to their GP about any changes so you can find out about whether any treatments or support may be available.\u00a0<\/span><\/p>\n<h3 class=\"pf0\"><span class=\"cf1\">Wanting a break<\/span><\/h3>\n<p class=\"pf0\"><span class=\"cf1\">While you might feel guilty for wanting to take a break from your caring role, having some time away may allow you to rest and recharge and feel more able to cope with your responsibilities. Respite care or professional home carer could provide the break you need.\u00a0<\/span><\/p>\n<h3 class=\"pf0\"><span class=\"cf1\">Unequal distribution of caring responsibilities<\/span><\/h3>\n<p class=\"pf0\"><span class=\"cf1\">If you are taking on the majority of caring responsibilities and you feel other family members are not pulling their weight, it can feel unfair and lead to feelings of resentment or overwhelm. If this is the case, try talking to others who may be able to help with tasks and calmly explain how you\u2019re feeling, as well as what you need help with.\u00a0\u00a0<\/span><\/p>\n<h3 class=\"pf0\"><span class=\"cf1\">Feelings of guilt about moving your loved one into a care home<\/span><\/h3>\n<p class=\"pf0\"><span class=\"cf1\">It is natural to feel guilty about moving someone into a <a href=\"https:\/\/www.dementiauk.org\/information-and-support\/specialist-diagnosis-and-support\/considering-a-care-home-for-a-person-with-dementia\/\">care home<\/a>, especially if you have been caring for them up until that point, but it is important to remember that:\u00a0<\/span><\/p>\n<ul>\n<li class=\"pf0\"><span class=\"cf1\">It is not a failure on your part \u2013 as dementia progresses, many people will need more specialist care from trained professionals in a safe environment<\/span><\/li>\n<li class=\"pf0\">Care homes not only specialise in supporting the person\u2019s health and wellbeing, but can also help give a sense of community, as well as activities and companionship<\/li>\n<li class=\"pf0\">With some of the caring responsibilities relieved, you can go back to focusing on the relationship between yourself and the person you\u2019ve been caring for, and enjoying your time with them<\/li>\n<\/ul>\n<h2>How to manage feelings of guilt<a id=\"manage\"><\/a><\/h2>\n<p><!--EndFragment --><\/p>\n<p><!--StartFragment --><\/p>\n<p class=\"pf0\"><span class=\"cf0\">As previously mentioned, feelings of guilt are understandable and perfectly normal. These emotions can be difficult to acknowledge and accept, but there are ways to manage guilt and take care of yourself and the person you are caring for.\u00a0<\/span><\/p>\n<h3 class=\"pf0\"><span class=\"cf0\">Acknowledge where the feelings come from<\/span><\/h3>\n<p class=\"pf0\"><span class=\"cf0\">Acknowledging your feelings and where they come from is an important step in managing them and making a plan of action to help you feel better. Ask yourself why you feel guilty and when the feelings started to pinpoint what has caused you to feel this way.\u00a0<\/span><\/p>\n<h3><span class=\"cf0\">Speak to loved ones about your feelings<\/span><\/h3>\n<p class=\"pf0\"><span class=\"cf0\">Opening up to those who love you can bring feelings of relief and comfort. It is also worth nothing that unless you are honest, they may not know how you are feeling or how to help you, whether that be by sharing caring duties or providing emotional and practical support.\u00a0<\/span><\/p>\n<h3 class=\"pf0\"><span class=\"cf0\">Setting expectations<\/span><\/h3>\n<p class=\"pf0\"><span class=\"cf0\">It\u2019s important to remember that you are human and can\u2019t do everything yourself. Having clear boundaries and setting expectations means that you can get support and look after your own mental health. If you are splitting caring responsibilities with another person, discuss who is responsible for what and make sure to keep communication open and honest.\u00a0<\/span><\/p>\n<h3 class=\"pf0\"><span class=\"cf0\">Looking after yourself<\/span><\/h3>\n<p class=\"pf0\"><span class=\"cf0\">It can be easy to overlook your <a href=\"https:\/\/www.dementiauk.org\/information-and-support\/looking-after-yourself-as-a-carer\/looking-after-yourself-when-youre-caring-for-someone-with-dementia\/\">own needs<\/a> if you are caring for someone else, but it\u2019s important to ensure you are healthy to be able to give them the best support.<\/span><\/p>\n<h4 class=\"pf0\"><span class=\"cf0\">Exercise<\/span><\/h4>\n<p class=\"pf0\"><span class=\"cf0\">It\u2019s recommended that adults get 150 minutes of exercise per week to stay physically and mentally healthy. Physical activity like walking, exercise classes, going to the gym or out for a run can also give you a break from caring duties. If you request a carer&#8217;s assessment, you might be eligible for some assistance to help you access exercise to support your mental and physical health.<\/span><\/p>\n<h4 class=\"pf0\"><span class=\"cf0\">Diet<\/span><\/h4>\n<p class=\"pf0\"><span class=\"cf0\">We all need <a href=\"https:\/\/www.dementiauk.org\/information-and-support\/health-advice\/eating-and-drinking\/\">healthy, balanced meals<\/a> to give us fuel. While it\u2019s understandable you may not have much time to cook <\/span><span class=\"cf1\">\u2013 or even eat regularly \u2013\u00a0 there are ways that you can eat healthily without too much preparation. Batch-cooking healthy meals that can be put in the freezer and warmed up later is a great way to make sure you eat well if you don\u2019t have time to cook every day. You can also prepare healthy snacks to keep in the fridge or carry around with you, such as fruit or vegetables like carrot sticks.<\/span><\/p>\n<h4 class=\"pf0\"><span class=\"cf1\">Therapy<\/span><\/h4>\n<p class=\"pf0\"><span class=\"cf1\">Sometimes talking to someone outside your family and friends can be helpful, particularly to process any difficult emotions or situations you are facing as a carer. Your GP can direct you to therapy services in your local area.<\/span><\/p>\n<h4 class=\"pf0\"><span class=\"cf1\">Focus on the positive impact you\u2019ve had<\/span><\/h4>\n<p class=\"pf0\"><span class=\"cf1\">When you think about what you\u2019re doing for the person you\u2019re caring for, focus on the positive impact that you\u2019ve had on them and their life. If you&#8217;re having a tough time, consider what you would say to someone close to you who is experiencing the same feelings while caring for someone else.<\/span><\/p>\n<h2>Let&#8217;s talk about guilt &#8211; Susan&#8217;s experience<\/h2>\n","protected":false},"excerpt":{"rendered":"<p>Caring for a person with dementia can be challenging and many people will feel a range of emotions as a carer. One of the most common feelings is of guilt. On this page, our dementia specialist Admiral Nurses explore why carers might feel guilty, how to manage these feelings and how to get support. Is [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":0,"parent":3723,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"class_list":["post-7102","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.0 (Yoast SEO v27.3) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Coping with feelings of guilt as a dementia carer - Dementia UK<\/title>\n<meta name=\"description\" content=\"Understand why those who care for someone with dementia may have feelings of guilt, as well as the support available.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.dementiauk.org\/information-and-support\/looking-after-yourself-as-a-carer\/coping-with-feelings-of-guilt-when-you-care-for-someone-with-dementia\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Coping with feelings of guilt as a dementia carer\" \/>\n<meta property=\"og:description\" content=\"Dementia UK is a charity that provides Admiral Nurses for families affected by dementia. 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