{"id":5573,"date":"2023-08-11T10:49:26","date_gmt":"2023-08-11T10:49:26","guid":{"rendered":"https:\/\/www.dementiauk.org\/?page_id=5573"},"modified":"2026-04-01T15:36:10","modified_gmt":"2026-04-01T15:36:10","slug":"learning-disabilities-and-dementia","status":"publish","type":"page","link":"https:\/\/www.dementiauk.org\/information-and-support\/health-advice\/learning-disabilities-and-dementia\/","title":{"rendered":"Learning disabilities and dementia"},"content":{"rendered":"<p><span data-contrast=\"auto\">People with learning disabilities, including Down\u2019s syndrome, are more likely to develop dementia. Our specialist Admiral Nurses, along with <\/span><a href=\"https:\/\/www.macintyrecharity.org\/\" target=\"_blank\" rel=\"noopener\"><span data-contrast=\"none\">MacIntyre<\/span><\/a><span data-contrast=\"auto\"> \u2013 the learning disability charity \u2013 share their expert advice.<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n<h3>Are people with learning disabilities more likely to develop dementia?\u00a0\u00a0 <a id=\"develop\"><\/a><\/h3>\n<p><span data-contrast=\"auto\">In recent years, the number of people with learning disabilities being diagnosed with dementia has grown. This is partly because people with learning disabilities are more likely to develop dementia, and partly because life expectancy for people with learning disabilities is increasing all the time \u2013 and the risk of developing dementia increases with age.\u202f\u202f<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">People with a learning disability are also more likely to develop <\/span><a href=\"https:\/\/www.dementiauk.org\/information-and-support\/young-onset-dementia\/what-is-young-onset-dementia\/\"><span data-contrast=\"none\">young onset dementia<\/span><\/a><span data-contrast=\"auto\"> (where symptoms begin before the age of 65) \u2013 particularly people with Down\u2019s syndrome.\u00a0<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Dementia in people with learning disabilities often progresses, or appears to progress, more rapidly if it is not diagnosed promptly.<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n<h3>Signs of dementia in a person with a learning disability<span data-contrast=\"auto\">\u202f\u202f<\/span> <a id=\"signs\"><\/a><\/h3>\n<p><span data-contrast=\"auto\">Often, memory loss is one of the first signs of dementia, but people with a learning disability may show other symptoms first, such as:\u202f\u202f<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n<ul>\n<li><span data-contrast=\"auto\">changes in personality or mood<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/li>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"4\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"2\" data-aria-level=\"1\"><span data-contrast=\"auto\">poor concentration<\/span><\/li>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"4\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"2\" data-aria-level=\"1\"><span data-contrast=\"auto\">withdrawing from activities they usually enjoy<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/li>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"4\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"2\" data-aria-level=\"1\"><span data-contrast=\"auto\">difficulty <\/span><a href=\"https:\/\/www.dementiauk.org\/information-and-support\/financial-and-legal-support\/mental-capacity-and-decision-making\/\"><span data-contrast=\"none\">making decisions<\/span><\/a><span data-contrast=\"auto\">\/making impulsive decisions<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/li>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"4\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"2\" data-aria-level=\"1\"><span data-contrast=\"auto\">difficulty with tasks and activities they could usually manage independently<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/li>\n<\/ul>\n<p><span data-contrast=\"auto\">If these changes are persistent, getting worse or affecting the person\u2019s daily life, you should <\/span><a href=\"https:\/\/www.dementiauk.org\/information-and-support\/specialist-diagnosis-and-support\/getting-the-best-out-of-gp-and-other-health-appointments\/\"><span data-contrast=\"none\">book an appointment with their GP<\/span><\/a><span data-contrast=\"auto\">.\u202fIt is helpful to keep a record of their symptoms; if the person is under 65, you could use the Young Dementia Network\u2019s <\/span><a href=\"https:\/\/youngdementianetwork.org\/resources\/personal-checklist\/\"><span data-contrast=\"none\">personal checklist<\/span><\/a><span data-contrast=\"auto\"> for this.<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Anyone over the age of 14 who has a learning disability should have an annual health check with their GP to identify any health problems they are experiencing, including dementia. To ensure the person is offered this check, you can ask the GP to include them on the practice\u2019s learning disability register.\u00a0<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n<h3>Steps for getting a diagnosis of dementia<span data-contrast=\"auto\">\u202f\u202f<\/span><\/h3>\n<p><span data-contrast=\"auto\">The GP should start by assessing whether the person has an underlying condition that could cause similar symptoms to dementia, eg:<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n<ul>\n<li><a href=\"https:\/\/www.dementiauk.org\/information-and-support\/health-advice\/managing-depression\/\"><span data-contrast=\"auto\">depression<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/a><\/li>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"5\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"2\" data-aria-level=\"1\"><a href=\"https:\/\/www.dementiauk.org\/information-and-support\/young-onset-dementia\/living-with-young-onset-dementia\/perimenopause-and-menopause\/\"><span data-contrast=\"auto\">menopause<\/span><\/a><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/li>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"5\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"2\" data-aria-level=\"1\"><span data-contrast=\"auto\">vitamin B12 deficiency<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/li>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"5\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"2\" data-aria-level=\"1\"><span data-contrast=\"auto\">abnormal thyroid function\u00a0<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/li>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"5\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"2\" data-aria-level=\"1\"><a href=\"https:\/\/www.dementiauk.org\/information-and-support\/health-advice\/delirium\/\"><span data-contrast=\"none\">delirium<\/span><\/a><span data-contrast=\"auto\"> (acute confusion, often resulting from illness or infection)\u00a0<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/li>\n<\/ul>\n<p><span data-contrast=\"auto\">To rule out underlying conditions, the GP may suggest doing blood tests and a urine sample. If the person is unable or unwilling to consent to these tests, ask the GP about other ways to make an assessment.\u00a0<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">The GP may briefly test the person\u2019s cognitive abilities and short-term memory by asking them to name some common items, remember a name or address, and draw an everyday object, usually a clock. Some people struggle with these tests because of their learning disability rather than dementia; tell the doctor if this is likely to be the case.\u202f\u202f<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">If other conditions are ruled out, the GP may refer the person for further assessments. These are typically carried out at a memory clinic, but assessing a person with a learning disability can be more difficult and so should include a multidisciplinary team that includes a:<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n<ul>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"5\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"6\" data-aria-level=\"1\"><span data-contrast=\"auto\">psychiatrist<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/li>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"5\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"7\" data-aria-level=\"1\"><span data-contrast=\"auto\">community learning disabilities nurse<\/span><\/li>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"5\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"7\" data-aria-level=\"1\"><span data-contrast=\"auto\">psychologist\u00a0<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/li>\n<\/ul>\n<p><span data-contrast=\"auto\">Do not be afraid to ask for reasonable adjustments to support the person \u2013 for example, allowing extra time to answer questions, ensuring the environment is calm and quiet to help them focus, and providing information in accessible formats, such as easy-read versions of written resources.<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">If the person is diagnosed with dementia, the health professional should tell you what type they are thought to have and what will happen next in terms of treatment options, referrals to other specialists, and support you can access. \u202f<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n<h3>Difficulties getting a dementia diagnosis for people with learning disabilities<span data-contrast=\"auto\">\u202f<\/span><a id=\"difficulties\"><\/a><\/h3>\n<p><a href=\"https:\/\/www.dementiauk.org\/information-and-support\/specialist-diagnosis-and-support\/how-to-get-a-diagnosis-of-dementia\/after-a-diagnosis-of-dementia-next-steps-checklist\/\"><span data-contrast=\"none\">Getting a diagnosis of dementia<\/span><\/a><span data-contrast=\"auto\"> can be difficult for a person with learning disabilities. Understanding of learning disabilities and dementia amongst healthcare professionals is variable, and dementia symptoms are often put down to the person\u2019s learning disability. In some cases, specialist dementia services like memory clinics do not even accept referrals for people with learning disabilities.\u202f\u202f<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">If you need support with getting a diagnosis of dementia for a person with learning disabilities, please call our free <\/span><a href=\"https:\/\/www.dementiauk.org\/information-and-support\/how-we-can-support-you\/book-a-virtual-appointment\/book-an-appointment\/\"><span data-contrast=\"none\">Helpline<\/span><\/a><span data-contrast=\"auto\"> on 0800 888 6678 to speak to a specialist dementia nurse.\u202f\u202f<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n<h3>Living with a learning disability and dementia<span data-contrast=\"auto\">\u202f<\/span> <a id=\"living-with\"><\/a><\/h3>\n<p><span data-contrast=\"auto\">Living with a learning disability and dementia can be challenging for the person, their family and other people who support them. However, the right care and support can help everyone manage these challenges as well as possible.\u202f\u202f<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">In addition to seeing their usual health and social care team, the person may be referred to other professionals like a social worker, occupational therapist or psychiatrist.\u202fWhere possible, keep the person informed about any changes to their care team.<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">To establish what support the person needs, including home adaptations, <\/span><a href=\"https:\/\/www.dementiauk.org\/information-and-support\/living-with-dementia\/living-aids-and-assistive-technology\/\"><span data-contrast=\"none\">assistive living equipment<\/span><\/a><span data-contrast=\"auto\"> and paid care, and any available funding for these, you can request a <\/span><a href=\"https:\/\/www.gov.uk\/apply-needs-assessment-social-services\" target=\"_blank\" rel=\"noopener\"><span data-contrast=\"none\">needs assessment<\/span><\/a><span data-contrast=\"auto\"> through <\/span><a href=\"https:\/\/www.nhs.uk\/service-search\/other-health-services\/local-authority-adult-social-care\" target=\"_blank\" rel=\"noopener\"><span data-contrast=\"none\">Social Services<\/span><\/a><span data-contrast=\"auto\">.\u00a0<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Families and carers who support the person could also consider enrolling in carer education programmes that are available from organisations like <\/span><a href=\"https:\/\/dementiacarers.org.uk\/\" target=\"_blank\" rel=\"noopener\"><span data-contrast=\"none\">Dementia Carers Count<\/span><\/a><span data-contrast=\"auto\"> and <\/span><a href=\"https:\/\/www.tide.uk.net\/\" target=\"_blank\" rel=\"noopener\"><span data-contrast=\"none\">tide<\/span><\/a><span data-contrast=\"auto\">.\u202f<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Support groups can be a great source of support and companionship for the person with learning disabilities and their carers. You can ask your GP, social worker or council for information on local services, such as <\/span><a href=\"https:\/\/www.macintyrecharity.org\/our-approach\/health\/dementia\/memory-cafes\/\" target=\"_blank\" rel=\"noopener\"><span data-contrast=\"none\">MacIntyre Memory Caf\u00e9s<\/span><\/a><span data-contrast=\"auto\"> for people with learning disabilities and dementia.<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">As far as possible, help the person keep to their usual routine and continue with activities they enjoy, with adaptations and support if necessary \u2013 making big or sudden changes can be confusing and distressing. Give them more time for daily tasks and help them maintain as much independence as possible, with support if needed.\u202f<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n<h3>Healthy living advice\u202f\u202f <a id=\"healthy\"><\/a><\/h3>\n<ul>\n<li><span data-contrast=\"auto\">Ensure the person is <\/span><a href=\"https:\/\/www.dementiauk.org\/information-and-support\/health-advice\/eating-and-drinking\/\"><span data-contrast=\"none\">eating and drinking<\/span><\/a><span data-contrast=\"auto\"> well. Look for signs of hunger or thirst that they might not be able to express, such as weight gain\/loss, constipation and dehydration\u202f\u202f<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/li>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"9\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"2\" data-aria-level=\"1\"><span data-contrast=\"auto\">If applicable, encourage the person to stop smoking and reduce\/cut out <\/span><a href=\"https:\/\/www.dementiauk.org\/information-and-support\/living-with-dementia\/alcohol-and-dementia\/\"><span data-contrast=\"none\">alcohol<\/span><\/a><span data-contrast=\"auto\">\u202f\u202f<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/li>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"9\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"2\" data-aria-level=\"1\"><span data-contrast=\"auto\">Support them in getting enough <\/span><a href=\"https:\/\/www.dementiauk.org\/information-and-support\/living-with-dementia\/dementia-and-sleep\/\"><span data-contrast=\"none\">sleep<\/span><\/a><span data-contrast=\"auto\">: tiredness can make dementia symptoms worse<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/li>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"9\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"2\" data-aria-level=\"1\"><span data-contrast=\"auto\">Encourage the person to participate in physical activity to boost their health and wellbeing and help them reach\/maintain a healthy weight<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/li>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"9\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"2\" data-aria-level=\"1\"><span data-contrast=\"auto\">Ensure they attend check-ups with their GP\/specialist, optician, dentist and audiologist. Things like infections, pain, sight and hearing problems can all make their dementia seem worse\u202f<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/li>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"9\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"2\" data-aria-level=\"1\"><span data-contrast=\"auto\">Watch for signs of mental health issues like <\/span><a href=\"https:\/\/www.dementiauk.org\/information-and-support\/health-advice\/managing-anxiety-and-depression-in-a-person-living-with-dementia\/\"><span data-contrast=\"none\">anxiety and depression<\/span><\/a><span data-contrast=\"auto\">: people with learning disabilities may have difficulty communicating their emotions<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/li>\n<\/ul>\n<h3>Creating a safe and supportive home environment <a id=\"home\"><\/a><\/h3>\n<p><span data-contrast=\"auto\">Whether the person with a learning disability and dementia lives independently, with family or in supported accommodation, take a look at their <\/span><a href=\"https:\/\/www.dementiauk.org\/information-and-support\/living-with-dementia\/making-the-home-safe-and-comfortable-for-a-person-with-dementia\/\"><span data-contrast=\"none\">home environment<\/span><\/a><span data-contrast=\"auto\"> to identify ways to keep them safe and help them maintain their independence. For example:\u00a0<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n<ul>\n<li><span data-contrast=\"auto\">remove rugs that could be tripped over<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/li>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"9\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"8\" data-aria-level=\"1\"><span data-contrast=\"auto\">label cupboards with what is inside<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/li>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"9\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"8\" data-aria-level=\"1\"><span data-contrast=\"auto\">fit safety devices to stop cookers and taps being left on<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/li>\n<\/ul>\n<p><span data-contrast=\"auto\">If the person lives in supported accommodation or a group setting, staff and other residents will need to be aware of their dementia diagnosis and how it affects them. <\/span><a href=\"https:\/\/www.macintyrecharity.org\/our-approach\/resources\/\" target=\"_blank\" rel=\"noopener\"><span data-contrast=\"none\">Easy-to-read leaflets<\/span><\/a><span data-contrast=\"auto\"> are available from MacIntyre.\u00a0<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335557856&quot;:16777215,&quot;335559739&quot;:0,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">If the person lives with family, it is important to consider how their care may need to be adapted as their dementia progresses. For example, if they live with elderly parents who are frail or have health and\/or mobility conditions, a paid home carer could relieve some of the strain.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335557856&quot;:16777215,&quot;335559739&quot;:0,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">If the person eventually needs additional support from a home carer or to move into a care home, staff will need specialist knowledge and skills to support their needs. Some care homes will accept people with mild to moderate learning disabilities, but a specialist home may be more suitable for a person with complex needs<\/span><span data-contrast=\"none\">. Again, include the person in these decisions as far as possible.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335557856&quot;:16777215,&quot;335559739&quot;:0,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p>\n<h3>Tips for communication<span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/h3>\n<p><span data-contrast=\"auto\">People with learning disabilities and dementia may have difficulties <\/span><a href=\"https:\/\/www.dementiauk.org\/information-and-support\/living-with-dementia\/tips-for-communication\/\"><span data-contrast=\"none\">communicating<\/span><\/a><span data-contrast=\"auto\">, understanding, and\/or processing and remembering information, so be prepared to change how you communicate. For example:<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n<ul>\n<li><span data-contrast=\"auto\">Keep explanations clear and sentences short<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/li>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"9\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"11\" data-aria-level=\"1\"><span data-contrast=\"auto\">Break instructions down into individual steps\u00a0<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/li>\n<li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"9\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"11\" data-aria-level=\"1\"><span data-contrast=\"auto\">Ask simple, direct questions rather than open-ended ones \u2013 eg \u201cShall we go shopping today?\u201d instead of, \u201cWhere shall we go today?\u201d\u202f\u202f<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/li>\n<\/ul>\n<p><span data-contrast=\"auto\">It is a good idea to help the person create a <\/span><a href=\"https:\/\/www.dementiauk.org\/information-and-support\/living-with-dementia\/creating-a-life-story\/\"><span data-contrast=\"none\">life story<\/span><\/a><span data-contrast=\"auto\"> \u2013 a record of important information such as their personal details, past and current life and future hopes. This can help other people, including carers, better understand and communicate with them.\u00a0<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335557856&quot;:16777215,&quot;335559739&quot;:0,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p>\n<h3>Planning for the future <a id=\"planning\"><\/a><\/h3>\n<p><span data-contrast=\"auto\">To ensure the person with dementia and a learning disability is well supported in the future, it is important to make:<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n<p><a href=\"https:\/\/www.dementiauk.org\/information-and-support\/financial-and-legal-support\/advance-care-planning\/\"><b><span data-contrast=\"none\">An advance care plan<\/span><\/b><\/a><b><span data-contrast=\"auto\">:<\/span><\/b><span data-contrast=\"auto\"> this sets out the person\u2019s wishes for their future care, such as where they would like to be cared for and medical treatments they do\/do not want. This is not legally binding but will help guide their care. You should work with the person\u2019s care team to create this plan, involving the person themselves as fully as possible. We have a <\/span><a href=\"https:\/\/www.dementiauk.org\/wp-content\/uploads\/dementia-uk-advance-care-plan-template.pdf\"><span data-contrast=\"none\">template<\/span><\/a><span data-contrast=\"auto\"> you can use.<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n<p><a href=\"https:\/\/www.dementiauk.org\/information-and-support\/financial-and-legal-support\/lasting-power-of-attorney\/\"><b><span data-contrast=\"none\">Lasting power of attorney<\/span><\/b><\/a> (LPA)<b><span data-contrast=\"auto\">: <\/span><\/b><span data-contrast=\"auto\">this is a legal document that enables you and\/or other named people to make decisions about the person\u2019s health and welfare and\/or property and financial affairs if they lack the <\/span><a href=\"https:\/\/www.dementiauk.org\/information-and-support\/financial-and-legal-support\/mental-capacity-and-decision-making\/\"><span data-contrast=\"none\">mental capacity<\/span><\/a><span data-contrast=\"auto\"> to do so themselves.\u202f<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">If the person with learning disabilities does not have an LPA, they should make one as soon as possible. If they do not have the capacity to make an LPA, a health or care professional may need to work with you, the person and other carers to make decisions on their behalf, in their best interests.\u00a0<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">The equivalent of an LPA in Scotland is called <\/span><a href=\"https:\/\/www.mygov.scot\/power-of-attorney\" target=\"_blank\" rel=\"noopener\"><span data-contrast=\"none\">power of attorney<\/span><\/a><span data-contrast=\"auto\">; and in Northern Ireland, <\/span><a href=\"https:\/\/www.nidirect.gov.uk\/articles\/managing-your-affairs-and-enduring-power-attorney\" target=\"_blank\" rel=\"noopener\"><span data-contrast=\"none\">enduring power of attorney<\/span><\/a><span data-contrast=\"auto\">.<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:276}\">\u00a0<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>People with learning disabilities, including Down\u2019s syndrome, are more likely to develop dementia. Our specialist Admiral Nurses, along with MacIntyre \u2013 the learning disability charity \u2013 share their expert advice.\u00a0 Are people with learning disabilities more likely to develop dementia?\u00a0\u00a0 In recent years, the number of people with learning disabilities being diagnosed with dementia has [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":0,"parent":2400,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"class_list":["post-5573","page","type-page","status-publish","hentry","topic-young-onset-dementia"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.0 (Yoast SEO v27.3) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Learning disabilities and dementia - Dementia UK<\/title>\n<meta name=\"description\" content=\"How to support someone with a learning disability and dementia.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.dementiauk.org\/information-and-support\/health-advice\/learning-disabilities-and-dementia\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Learning disabilities and dementia\" \/>\n<meta property=\"og:description\" content=\"Dementia UK is a charity that provides Admiral Nurses for families affected by dementia. 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